Life had been pretty uneventful over the past weeks and I almost let myself drift into a sense of relief. Although I had ongoing anxiety over my upcoming CT scan, the real possibility that it could be clear and we could get on with normal life kept bubbling up. Talyn started at his preschool and Ryan and I were back at work and loving life.
But then our family got struck with another blow this morning. Ryan's latest MRI shows some growth from his tumour and unfortunately this has happened quite quickly over the past two months. Although Ryan's brain tumour has always behaved quite passively over the 11 years he has had it, we knew that there was a possibility that it could turn aggressive at some point. The doctors think this might be what has happened.
The next couple of weeks will be filled with more scans and tests to determine exactly how much of the area of concern is tumour and what the real growth amount has been. Throughout this time, they will be planning in the background for the next likely event of a new form of radiation. These details are all still very new to us, but it is different than the last kind of radiation he had and although there are more risks this time, they feel it could be promising for him.
He will do this for 30 days and then the likely next step will be a very aggressive and new drug for chemotherapy. The oncologist kept saying that we are in tiger territory. It took me a couple of times to understand what he meant, but he was saying that we need to be aggressive, quick and that this is new territory for everyone. Ryan's case is definitely unique. For someone his age to have been dealing with a brain tumour for 11 years and to continue to function so well with all the treatment he has had, is truly an exception.
This is all really new news to digest and we are all trying to get our heads around the latest names of new drugs we've never heard before, new scans and what they will tell us and all the while trying to keep our heads up for Talyn and the new fight we are about to embark on. But don't worry, we are both very strong fighters and come tomorrow morning when we wake up, we will be ready to enter the boxing ring again and this time for the fight of our lives! Get ready to be defeated once and for all cancer...